The Linn Blog

March 23, 2008

Happy Birthday to Me


I had a great birthday! I turned 21 for the 17th time and it was a great day.

I started the day off with a great spin class. Then, off to work where my parents came to visit and my co-workers threw me a great party with mimosas and ice-cream cake!

Dave and I went to a great Argentinian restaurant for dinner and ended up the day watching NCAA basketball. What a great day.

Unfortunately Duke lost the next day so I am no longer that excited about March Madness.

This coming Tuesday I am being awarded one of ten New Jersey Women of the Year awards and then I had off t Los Angeles for the Nickelodeon Kid's Choice Awards. So, I promise to write a juicy update soon!

March 09, 2008

How much of an Exception is Cancer?

As a birthday treat, my mom is spoiling me and taking me to Canyon Ranch in Lenox, MA. We are also traveling there with my friend Tina along with her mom and sister. Tina and her family have been there many times so I jokingly call her my "Sherpa" -- she will guide me and make sure I don't go astray as I sign up for all of the wonderful activities that Canyon Ranch has to offer.


In order to make the most of your stay, Canyon Ranch asks each visitor to fill out an extensive "Health & Lifestyle Questionnaire". How you answer the questionnaire helps the resort plan an individualized, highly customized, "once in a lifetime" stay for each visitor (their savvy marketing words which I respect and hope are true!)

I sat down this morning to fill out my questionnaire. I was answering the questions without much thought when suddenly the question "In general, how would you describe your health?" popped up. I had the choice of selecting, "Excellent", "Good", "Fair" or "Poor". I quickly answered "excellent" and moved on. Dave looked over my shoulder and said "I don't think you can say that you are in excellent health"....hmm, this is a dilemma.

How do I answer this question? In my heart and soul, I do feel excellent. Yes, I have occasional side effects from the chemo and yes I tend to sleep a lot at night. But my workouts have been solid, I eat well and I take very good care of myself. With the exception of cancer I am very healthy!

So, I guess the real question is, "how much of an exception is cancer?" It is hard for me to accept and truly believe that my body is not well. Before I was diagnosed in December, 2004 I felt very unhealthy. The fevers, night sweats and flu-like symptoms made me feel horrible. However, since we found the tumors 3+ years ago and have had a medical plan in place, most days I feel great!

I understand why I need to tell Canyon Ranch that I have cancer but can’t I still say that I rate my health as “excellent?” If my mind and body feel great, why does a condition or a word like cancer get in the way of how I describe myself to other people?

I spent all day today pondering how to answer the questionnaire. I decide to go with “Excellent” with an * that says I have been actively dealing with cancer for the past 3.5 years. Let Canyon Ranch interpret this as they will. I am being true to my “condition” but not allowing my condition to define who I am or how I feel!

That being said, I had a bit of a tough weekend with chemo. I went into my treatment on Friday with a cold which made the chemo a lot harder to handle. The nausea and exhaustion stayed with me for Friday night and most of Saturday but now I am back on my feet.

Heading to the gym now to stay true to my “excellent” health status.

March 01, 2008

Life is Good...1 Year Later

Sunday, March 2nd is a very meaningful day for me. It marks exactly 1 year since I started chemotherapy for the 2nd time. It is hard to believe that for the past 52 weeks I have been getting chemotherapy practically every week. Dave took this picture last year on the first day of treatment #2.

In some ways my recurrence (I don't like using the word relapse because it sounds like I had something to do with the cancer coming back) feels like it happened years ago and in some ways it feels like only yesterday.

I remember very vividly the shock, anger and disappointment I felt when Dr. Maki shared with me the fact that 2 tumors had reappeared and that I would have to go through even more chemotherapy...and that the chemotherapy would most likely last a much longer time.

I remember the anger that I felt when I learned that the new chemotherapy regimen I was going to be placed on would cause me to lose my hair. It had taken me more than a year to FINALLY accept my "new hair". I had gone through months of feeling ugly, masculine etc. and I finally felt like my hair was morphing into some sort of style. I had finally gotten past the phase of "she is getting over cancer" hair and had evolved to the "she just has a cute, short hair cut" hair. And now, to be told that I would lose my hair again, and that down the road I would have to go through this whole "hair growing back" process again, it was too much to handle.

I remember wondering how I was going to possibly garner the mental and physical strength to go through this process yet again. I had put everything I had into my first round of treatments and surgery. To be told that I would have to find the strength to do it all over again really made me ask the question, "Do I have it in me to gear up for the fight?"

I remember having just been offered a new job opportunity and wondering whether I could really accept the position given this new diagnosis. Would a new workplace understand my situation and would I be healthy enough to take on a new job and thrive?

What's amazing is that my first bout with cancer consisted of 2 surgeries and 6 months of chemotherapy. This second round, to date, has consisted of 1 surgery and 12 months of chemotherapy...and I'm not done yet.

It's interesting to me that although this second round is lasting more than 2x as long as the first, I feel like the first round took much more out of me...physically and mentally. The second time has become more of a "routine" and I much more comfortable dealing with it.

In fact, I think it's correct to say that everyone in my world has handled this second round with a maturity that we didn't have the first time around. No longer do we obsess over every side effect I have or plan our lives around my next CT scan or treatment. In fact, I feel like over the past 6 months, I am able to go out to dinner with friends and family and we don't even talk about my cancer. People no longer ask me "how-are-you-feeling-type" questions and this is great!

It's amazing what someone can handle when they are told they don't really have a choice. I believe my diagnosis is a testament to what the body and mind are capable of dealing with when giving up is not an option. If you had told me 3.5 years ago that I would be diagnosed with a rare form of cancer and that I would have to endure at least 3 surgeries and 18 months of aggressive chemotherapy, I don't know what I would have done. It would have been way too overwhelming for me to even know how to handle. However, 3.5 years later, this is exactly what I have managed.

The irony is that I feel like I have not just managed this cancer but I have thrived throughout this diagnosis. Cancer has given me the opportunity to really test what I am made of...

To celebrate 1 year of non-stop chemo, I am going to take a 2 hour cycling class. As I sweat and struggle through the class, I will be reminded that despite the wear and tear of the chemo, I still am very much alive and thriving.

Have a great day! My favorite Spin4Survival pictures will be featured next!